Our Work · Working GroupS
Congenital and Pediatric Heart Disease
A number of ongoing efforts to build knowledge, develop consensus, and ignite innovation in congenital, adult congenital, and pediatric heart disease.
Connecting expertise across congenital and pediatric heart disease to address critical gaps in care
Advancing heart health over a lifetime.
In order to address the wide-ranging landscape of issues impacting patients with congenital and pediatric heart diseases, H&VC has formed a number of clinical working groups. Through its Adult Congenital, Congenital Device Innovation, Pediatric, and Pediatric Engineering Working Groups, H&VC is developing focused initiatives that consider the entire life span of children with valve-related heart disease.
Leadership
Meet the group’s leadership
Johns Hopkins Children’s Center / Johns Hopkins Medicine, Baltimore, MD
Boston Children’s Hospital, Boston, MA
Johns Hopkins Children’s Center, Baltimore, MD
Brigham and Women’s Hospital, Boston, MA
Mayo Clinic, Rochester, MN
Georgia Tech & Emory University, Atlanta, GA
Learn more from this working group
Publication · 2024
Congenital and Pediatric Heart Disease
This summary document reviews the current state of valve therapy for pediatric and congenital heart disease patients and the needs being addressed for continued valve development.
Podcast · 22 min
Video · 22 min
Congenital and Pediatric Heart Disease
Bioprosthetic Valve Durability: A Multi-Disciplinary Approach
Martin Leon, Philippe Pibarot, and Ajit Yoganathan discuss the evolving understanding of bioprosthetic valve failure, the challenges of tissue deterioration, and the need for improved testing and collaboration to enhance valve longevity, especially for younger patients.
ACHD Heart Failure Innovation Summit: Define, Prevent, Treat, Support Workshop
May 21 & 22, 2026
Course Directors: Aimee Armstrong, Stephanie Fuller, Anne Marie Valente, Carole Warnes
Presentation: Day 2, 9:32 – 9:40
FDA: What Will it Take to Design a Device Regulatory Trial for this Population
Gavin D’Souza
Co-sponsored by
Watch the video
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